Sisterhood of Solidarity – Chronic Illness and that B*tch, Depression

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By: Jana Greene

Greetings to the 1,950 people STILL with me here at the BB, I cannot tell you how much I appreciate and love my dear readers. ❤ I guess I should start this post with a disclaimer:

Warning – this is not a happy, shiny, churchy article.

It does not “glorify the lord,” necessarily. (Although I’m of the mind that God will be glorified in EVERYTHING in it’s time…)

Also – and let’s just get this out of the way – I have salty language. I’d like to say I’m working on it, but I’m trying to be transparent, and it’s actually the least of my damn worries.

Please don’t tell me how I’m already healed by the stripes of Jesus.

Please don’t insist I pull myself up by the bootstraps.

Please don’t tell me I am…

(1) under demonic oppression (been there, got that T-shirt…),

(2) not trusting God (because when someone is hurting, making them question their faith is always helpful,) Or…

(3) need to try an essential oil / nutritional shake (although it tickles me that the same issue can be considered “treated” by demon expulsion OR Plexus! Whichever!)  ¯\_(ツ)_/¯

I believe the last time I posted, I resolved to write a post every single day for a while, which was vintage me – setting up expectations I will never fulfill. I’m wicked good at writing emotional checks that my mind can’t cash.

Today I decided to write because I find myself in more solidarity with my depression than with my fellow sisters who are also fighting the good fight. I’m not sure what anxiety and depression feel like to you, but here’s my breakdown:

A sense of DOOM. Doom. Doom, dooooooom.

It also feels like:

Nothing is going to work out.

I’ll always be in physical pain.

I’ll probably always struggle.

But sometimes, you just have to get sassy back.

Sometimes, you just need to call a bitch out, and this bitch is DEPRESSION.

It has taken literal YEARS to receive the correct diagnoses-es, fight with God about the ensuing bitterness, and come to an acceptance.

Usually, I am pretty freaking accepting and have figured out a million work-arounds to deal with life.

“Doom mind” isn’t the most most Christian-ese terminology. Even admitting that I still struggle with it still feels janky, because being vulnerable is hard. Aren’t we supposed to play OPTIMISTIC, HEALTHY, and LIGHT-HEARTED?

The thing is, I’m not sure Christians are doing the hurting world any favors by wearing these stupid masks. I don’t think Jesus judges depressed people for being depressed. It doesn’t licit his anger, but his compassion. That much I DO know.

I am a pretty happy person, generally. I LOVE life.

I absolutely LOVE to laugh. I’m creative. I love hard. I don’t want to be sad.

Usually, it’s just easier for everyone for me to fake being okay.

Dry that tear.

Minimize that limp.

Ignore the anxiety attack.

Get out of those pajamas.

Apologize for being depressed – I have so much to be grateful for!

But some days, I can’t muster putting on a happy face.

Life is different now. Not always “bad,” but always “different.”

Mobility aids are not sexy. Prescriptions are not cheap. And you can only watch so many episodes of 90 Day Fiance without losing your ever-loving mind.

I’m hurting too bad to walk, just less climb mountains. My creativity feels shriveled up like it will NEVER return. I watch a thousand funny cat videos, but can’t rally with laughter.

It comes. It goes.

I’m doing my best.

And I’m supposed to do it without picking up a drink!

I don’t know how my friends remain supportive, and I appreciate them so much. But I also lay low sometimes especially with the good friends. Because who the hell wants to be bummed out?

I certainly don’t understand how my husband stays supportive. This is not what he signed up for (although to be fair, this is not what I signed up for either.)

Even for those of us blessed enough to be surrounded by love, it’s lonely. I cannot call my husband at work and worry him when he is already supporting his family by working hard every day. I wouldn’t want to. He has enough on him already!

I cannot call my daughters and whine every time I’m anxious or hurting, even though they are wonderfully supportive grown-ups. They have lives, and I want them to live their BEST possible ones.

So today, I’m writing as a little “reach out” measure in the blogosphere. Where my “spoonie” sisters at?

We just need eachother.

Something not a lot of people know about it a phenomenon that sick people – believers or not – don’t want or intend to check out.

We need to be able to say that we’re not okay without people assuming we are suicidal. I know people would rather be safe than sorry, but despondency comes in many flavors, and not all are true red flags. Some are just white flags of surrender.

I’m ok.

I’m not a danger.

I don’t need triage care.

I just need care.

I just need to know somebody else understands this lonely struggle with chronic pain and the havoc it wreaks on us via depression. Unless you are going through it, it’s hard to grasp, I’d imagine. I used to find this kind of thing impossible to understand myself.

A lack of serotonin and constant, unrelenting physical pain is a special kind of hell. I know Jesus walks through it with me; I totally feel his presence. I know I’m not completely alone. But damn if it can’t still feel lonely.

I’m writing today NOT because I have any answers, but because I feel alone and wonder if other chronically ill people feel me.

Do you understand?

If you do, I’m so sorry.

But how do you pull yourself up?

Let’s figure out this thing together and help one another.

When I have a painful day, and I say I’m DONE, the done-ness I’m talking about is hard to explain. It’s like when your toddler is at the grocery store and suddenly, inexplicably dissolves into a screaming, snot-faced, NO monster on Aisle 11, and cannot be reasoned with. He is DONE (temporarily.)

But I will. And I will smile / laugh / create another day.
So will you. ❤

The Grace Gospel Poem

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By: Jana Greene

What if you were already “right with the Lord,”

And didn’t have to live by the sword,

And battle every single day

With what you do or what you say?

What if you embraced your human-ness,

And didn’t have to strive and stress,

And earn your way into His good graces,

Would you then lean into wide open spaces

Of redemption and love, unconditionally given.

Would you then be so afraid of living?

If we believe what we claim to believe

Could our weary hearts gain a reprieve?

What if His love is totally free.

What, then, would would you open up to be?

What if you could truly rest,

Would you be less exhausted and less of a mess?

Does “it is finished” ring true to you,

Or are you still giving the devil his due?

We try so hard to earn His grace

When really if we seek his face,

We are already there

It is finished and done,

We are one with the Father

And one with the Son,

And Holy Spirit will guide us through;

If you trusted completion,

Tell me, what would you do?

 

Resurrecting the Bakery – a blog revival

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By: Jana Greene

Hello, dear readers.

It’s been a long time since I’ve blogged; the longest span of time in the six year history of The Beggar’s Bakery.  In the interim, I began another blog, “So She Laughed Anyway,” which takes on issues with a humorous bent. I think I’ve only posted three posts to it. It has been a dry season, writing-wise.

But here in a difficult place, I find myself needing to write again. And I think I need to do so often, as writing things down seems to relocate my thoughts to a better, less scary, neighborhood. The challenge to myself is to write a blog post every day, for 60 days. I am prayerful that God gives me material with which to work, but chances are good some of the posts might be drivel. If I go off the rails, please be patient with me. I will get my mojo back at some point.

What has been happening since last we met? A lot. A whole lot.

Over the past two years especially, my heart has been in religion deconstruction mode. In crisis with my health, I came face to face with the issue of trying to relegate the personal Jesus I know with the dogma of the Church Proper, and Jesus came out on top. I questioned everything I’d ever been taught, took a historical and contextual look at the Bible, and prayed that the very Spirit of God would reveal truth to me. I plan on touching on this process in the days to come. Much like any worthwhile endeavor, the process has not been linear. In reconstructing my entire faith, I feel like I might be able to tell others “where to find bread” again. But it won’t be white-washed and it won’t be fundamentalist Christianity. It will be Truth.

The aforementioned illness is a trifecta of health issues that are slowly causing me to lose mobility, and constantly causing me pain. Every day. Pain, in one form or another. I have Ehlers-Danlos Syndrome, POTs, and Mast Cell Activation Disease, severe and recurrent migraines, along with lots of other disorders and diseases. I just call it “Alphabet Soup Disorder” to save time. Lots of acronyms. Some of my genes are mutated, I am only grateful that neither of my children seems to have inherited these issues.

So, suffice to say, I am home a lot. I am by myself a lot. This necessity has proven to be both a benefit and a curse. It’s a sticky wicket, because the more isolated I become, the more depressed I get, and the more depressed I become, the less I want to physically be with my friends, because sick people can be a real drag.

There are two of me these days.  There is the sick me, who seems to be taking over some days. She is whiny, sad, hopeless, and in horrible pain; and there is the REAL me, who loves to laugh, be silly, encourage people, and travel. The real me is clawing her way back, but it seems that each time I gain a little foothold on the side of the wellness cliff, another boulder comes tumbling down. Sounds dramatic, right? Well, it feels dramatic.

It’s been a dramatic year for my family. A very difficult time. Yet I still haven’t taken a drink, and for that I am proud and very grateful.

I’ve begun a new hobby recently that has been a stepping stone to writing again. I’ve discovered abstract art, and the therapy of painting. A pretty good gauge of my mental health is the amount of paint on my person. The days I am up to my elbows in acrylics are the days that I started off sad and scared, and in some degree of physical and mental pain – and ended up creating something colorful that cheers me.

So, I am setting a goal to blog every day for two months, but I’m not going to set it in stone. I am fantastic at setting unrealistic expectations of myself. I’m going to try to write here or at SoSheLaughedAnyway.com each day, even when nothing I have to say is earth-shattering. I need to get back in the habit, even if not one single person reads my stuff.

There will be “brain droppings” (as the late, great George Carlin called random musings) about recovery, chronic illness, spiritual growth, and the general absurdity of life; and literally God only knows what else.

There will be posts with what some might consider controversial subject matter. There will be potty words. There will be transparency about my relationship with God, which looks almost nothing like it used to, but in a good way. There will be randomness.

Oh, so much randomness.

If you’re one of the 1,950 subscribers to The Beggar’s Bakery, I am so grateful for you. Thanks for sticking around. ❤ Please consider following “So She Laughed Anyway” on WordPress as well.

If you’re new, welcome to the jungle!

My goal is simple: Do life honestly, and share the journey.

God bless us, every one.

 

The Grace Commodity

 

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BY: JANA GREENE

Grace is a funny thing.

It delights us when granted when we screw up.

And it pisses us off when applied to someone we feel is undeserving of it.

It slips out of the cuffs of condemnation,

It rises above the rules we think it should follow.

It holds accountable only itself.

It is pure.

Grace is golden when get extend it,

And humbling when we receive it.

It runs ram-shod over rules, and laws,

It cares not for protecting secrets,

Or making others pay.

It isn’t “fair” to us,

And thank God for that.

Grace is a thousand points of light,

A thousand Tiffany lamps,

Shining, bold, brightly colored.

It is a “do over,” for what is done,

And a fresh start for what is coming.

Grace is the Bail Bondsman who leaves the door open.

It is the Father who forgets that you tripped up at all.

It is free, but not cheap.

When all other avenues have been exhausted,

Grace chases shame out of the neighborhood.

The only commodity we are commanded to spend,

Grace builds up,

Shores up,

Holds up.

The byproduct of love,

Grace has unfathomable value,

Just like those for whom it is poured out.

Grace can be scandalous and offensive,

But it always makes it’s mark,

Washing the Spirit clean.

Trade it, give it, spend it,

Let it set you free.

It is for freedom we are set free by it,

Spread that stuff around.

 

Election Reflection – thoughts on the day after

By: Jana Greene

I haven’t checked any poll results yet. I’m awake before the birds, having gone into exhausted sleep at 7pm last “night.” This year, I haven’t had the spare energy to get worked up about one candidate or another. Of course, I care deeply – I didn’t vote a straight ticket this year – I probably won’t again. I did take the time to research issues and individuals, with an emphasis on issues, one by one.

But this moment is pretty delicious; I know it’s fleeting. It’s still dark out this morning, and my husband is sleeping next to me, and I’ve no exposure to the militant anger – red and / or blue – that will no doubt flood my social media feed today. Nor do I feel any division at present – the “us vs. them” heavy-hitting that will doubtless follow us around in the coming days (weeks, months…years.) Right now, to my mind, we are a nation that turned out in droves to vote because we all, almost without exception, love our country. Period.

No matter what the results are, most of our motivations are pure. I’ll venture to bed the races were close, which won’t bode well. Because the tighter the race, the angrier the contenders and the more gloating the victors.

I’m urging my dear readers to remember that we are not first hawks or doves, but Americans.

Can we try to remember that opposing candidates – one of which won yesterday – are not saviors or devils? They are people, swayed by money and kudos, just like everyone else.

Let us remember that this election is a blip in history, not an opportunity to amp up national negativity. Yes, it impacts us. But not as much as the contact you have on the person you come across daily – the person who shows you kindness by forgiving your trespass, or even holding a door open for you. Yes, each of us feels passionately. Can we just try not to manifest that passion as hate?

Let us remember that the opposing party is not Enemy Number One, but consists of our daughters and sons, parents and friends – people we love who feel just as strongly as we do.

Let us remember we are first people, not politicos.

Let us remember that absolute pier corrupts absolutely, and that we all need to be represented.

Let us do one small thing today in the name of being the comrades we are – one act of kindness the day after an election is a platform I can really get behind! Heck, let’s do more than one thing, and trigger an explosion of good will, not in spite of our differences, but because of them. Let’s be mindful about it, too. Really stick it to “the man” and get along with each other on purpose. That’ll teach him!

Let’s try to do what Jesus would do today. Because if anyone should have a beef with how they are represented, it’s Christ. Yet He finds a way to keep living. I hope we can too, at least a little.

God bless us, every single one.

A Prayer for the Hallway – Faith in the in-between

 

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By: Jana Greene

Lots of people say that starting a thing is the hardest part, but I beg to differ. To me, the hardest part is when you’ve done all the things to put yourself on the right track, but it seems forces are conspiring against you.

Paranoid? Maybe. True? Certainly.

When you’ve changed your lifestyle to a healthy one, but have hardly lost an ounce over the course of weeks. I don’t know about you, but it was my intention to have a window opened to me when I said goodbye to pleasures like sugar and carbs. When I’m stuck in limbo, my Inner Jana really just wants to say, “Well, screw it! I tried! Back to the Haagen Dazs!”

And in matters much more important…

When you’ve chosen to step out in faith but doors are not exactly opening up to you.

When you are expecting God to part the Red Sea but He isn’t making a way for you like you’d trusted. He is doing it some other way – even though you clearly instructed Him to please come through.

Getting started isn’t always the hardest thing. Sometimes the hardest thing is to KEEP going.

Here’s another thing a lot of people say:

“When God closes a door, he opens a window.” To which I’d like to add – “but it’s HELL in the hallway!”

The hallway is the perfect place for giver-uppers to give up; trust me, I know.

In the hallway, the light is often busted. You cannot see a way out, no matter where you turn. Where’s that window again, God?

In the hallway, our hearts hurt. It’s a lonely, unforgiving place. It can easily feel like no one even knows you’re missing.

In the hallway, you feel vulnerable, like Eve when she discovered she was naked. Just you and your Maker in this strange place of neither here-nor-there.

It seems like the long hallway will never end at times. You walk and walk, and the hall just stretches ahead like a mirage. I mean, sometimes it REALLY just goes on and on.

The hallway seems like a TERRIBLE place to rest! Right beyond a locked door and with no other exits clearly marked. But “rest” is what we are supposed to do in the damn Hallway, I think.

The hallway can be a purgatory-esque place of extreme anxiety building and extreme faith building, in that order.

Here’s the thing about hallways, though. They always lead to somewhere.

Some of the longest, darkest hallways I’ve had to camp in on have been great places to wait it out and wait on God. Not COMFORTABLE places, mind you. But pretty good incubators for learning to truly trust, even when you cannot imagine what the future holds.

When I went through a divorce in the early 2000’s, I experienced a stint in one of the loneliest hallways of all time. Formerly a mom who worked from home, I had to go out and get four part-time jobs to care and feed for my kids. We had nobody else. For a period of a couple of years, I stayed in “fight or flight” mode, to the extent that I’m pretty sure I crashed my spiritual hard drive. I had shut a door that badly needed shutting, only to find that my circumstances got more difficult before they got any better (and they did.)

When I quit drinking, deciding to quit was not the hardest part. The hardest part was on Day 11 and 105 – random times when I’m just minding my own sober business and the shit hits the fan and I’m caught unaware by the drama. The only thing that got me through sober was the faith result of spending untold time in the hallway.

And now, with my janky health problems and chronic “I’m not sure what I want to do when I grow up” (I’m nearly 50…) state, I find myself in yet another corridor, waiting for God to open my window and trusting that when He does, it won’t be on the 21st floor.

I’m preaching to myself as well as anyone else! I’m struggling, ya’ll. That’s why I’m writing about this phenomenon, hoping to pull myself AND you up with the hope that God is indeed working on things, even when nothing changes on the surface.

Had I not sat in that lonely place of in-between for so long, I wouldn’t have known how to survive life on life’s terms. The Hallway isn’t really a Hell, but a changing room.

A portal to accepting GRACE.

I will keep pressing through the hallway if you will!

Until we come out the other side, please join me in this prayer. ❤

Dear Papa God,

I feel like I’m in between. In between things and people and places. I’m ready for the glorious answers to prayer, but I know that you ONLY have my best interest at heart and have wonderful things stored up for me just beyond the open window. Thank you for changing things in your perfect time, instead of my time – which is seen through such a limited scope. Help us to be patient in the hallways, when we feel lonely, lost, scared, or anxious. Thanks for camping out in the hallways WITH us. What a wonderful thing for a Father to do. Holy Spirit, instill in me the faith to keep on keepin’ on, every day, with assurance that YOU are faithful.

Amen.

 

How ’bout that OFFRED?

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By: Jana Greene
Okay. I’m about to pull a Jesus juke The Handmaid’s Tale.
If you’re not familiar with the show, that’s too bad. Remedy that please.
The protagonist – played by Elisabeth Moss – is everything a heroine should be, including relatable and flawed.
In addition to giving me the compulsion to approach strangers in the produce section of the grocery store and whisper, “Blessed be the fruit” for my own entertainment, The Handmaid’s Tale is also an incredible series laced with danger, truth, and foreboding.
SO much terrifying allegory for a world that I could not have imagined in my younger days, but is now reality. It is about having human rights stripped away – even one’s very identity.
No spoiler alerts here, just little old me spreading thoughts for your perusal.
This show illustrates religion vs. grace in an embarrassingly bright light.
It’s about what happens when an ‘elite’ few in are allowed to run amok over its own citizenry, in the name of the “common good.”
Or worse, in the name of God.
And I guess that’s what especially pisses me off about the world we live in. We use His name to damn and to bless, as if we had that kind of power. Look at what a mess we’ve made! The evidence perpetuates itself –  God is rules. God is anger. God is the Nanny State.
Except that He is not. He is courage. He is compassion. He is freedom. The Word is a person, not a book.
Without going into spoiler-heavy detail, let’s just say in this cliché: the season two finale had many twists and turns. But all the while maintains it’s message:  You can try to twist ideologies to glorify your own, or embrace the truth about who you are. We cannot be boxed; Commanders, Guardians, Marthas, nor Handmaids.We were created for the wild liberation of individuality.
The fact that love conquers insurmountable odds is the godliest tale.
We simply cannot worship political parties.  Both have to potential to land us in a Orwellian spot like Gilead, one just as easily as the other. God has no political agenda. Only God can show us how to fight for justice while keeping our love front and center.
Like Jesus. Or like Offred….
I mean, JUNE.
May the Lord open.