What good is getting an accurate diagnosis, if there’s no cure? A woman I follow on Social media posed this question and it got me thinking. She also has Ehlers Danlos Syndrome.
Knowledge is power, and it explained a whole lifetime of things.
Every day of second grade, I had to spend afternoons with a tutor after school because I held my pencil “wrong.” I physically cannot hold it that way. My fingers wouldn’t work, still don’t.
I’ve had bad migraines all my life.
I cut myself constantly with knives in the kitchen, even as a kid. I’ve managed to cut myself with safety scissors.
Buttons are the devil.
Physical Education class was a nightmare. I kept getting injured doing the simplest things, and “sat out” many times, resulting “F’s” in cthat class. Turned ankles. Sprains. PE teachers are MERCILESS. I was fussed at for “not trying.” Or worse – “faking.” Id love to look them up and let them know what’s up.
I thought everyone got dizzy tying their shoes, every time.
Having a super shitty immune function, was sick constantly. Wouldn’t find out until adulthood I have immune deficiency.
I was in some degree of pain at all times – every joint. As far back as I can remember. Of course as the laxity in my joints increases with age, the pain gets worse.
My ankles are so weak, I broke my right one in two places from standing getting up to pee in thre middle of the night. Just torqued it wrong. I was so accustomed to pain, I walked on it for 11 days anyway before going to the doctor.
I always required more anesthesia, which is a redhead thing and an EDS thing.
There was a reason my body cannot do autonomic functions adequately – tempature regulation, blood pressure – just can’t handle it. The fluctuations that were such a mystery all my life make sense.
The hyper-mobility made for some good “party tricks” – contortionist stuff with knees and elbows, etc., but I had no idea it was a medical issue ad a young adult.
Knowing what was wrong – even though there is no cure and no really effective treatment – was momentous.
It means the difference between managing symptoms with some chance of alleviating some of the severity. It means the enlightenment of your own body, after feeling like you were made defectively.
I speak up for myself now. Well, sometimes. As long as it doesn’t rock the boat TOO much. As long as the person I have conflict with won’t stop loving me because I’m mad. Only when I’ve rolled the issue OVER and OVER I’m my brain ad nauseam and have decided I’m with a safe person. Only after I’ve played out the worst case scenario in my head, mini-grieved all possible outcomes. At times, after I speak my peace, (because I’ve learned my peace has value, too,) I will fret and worry that I’ve upset someone. Doesn’t matter if it concerns life events or little frustrations, I speak. Even if it’s a whisper, I speak. Even though I know assertion-guilt will try to make me feel like a bad human. I’m starting – with fits and stops – to say when I’ve been hurt or bothered, even though I’ve been a people pleaser all my life. So… No, You cannot talk to me like that. You may not treat me like that. Little Me had no say, but I’m re-parenting her, you see. I’m protecting her. I care what she has to say. Her feelings, views, and passions have value. I’m teaching her things that I (somehow managed) to teach my own daughters. They speak up for themselves, without fear of abandonment, because they know they’re safe. And Little Me is safe now too, finding her voice and using it. Progress, not perfection.
I once had a friend many years ago who embodied what I thought at the time was spiritual perfection.
She was, you see, a “Proverbs 31 woman” to the bone.
In my zeal to be like her (and thus, presumably like Jesus?) I kind of lost myself. Which is what many churchy folk will tell you is the whole point of being one. You’re supposed to lose your identity, or at the very least tweak it.
If you’re not familiar with the reference, it comes from the verse by the same name in the Bible and has become the litmus test of judging a woman’s “true” worth:
“….good woman is hard to find, and worth far more than diamonds. Her husband trusts her without reserve, and never has reason to regret it. She is never spiteful, she treats him generously all her life long. She shops around for the best yarns and cottons, and enjoys knitting and sewing….”
You get the gist of it.
I tried to emulate my angelic friend, which was problematic because it kept me feeling in a state of less than.
She was soft-spoken, where my nature is boisterous.
She was serene where I am neurotic.
She never cussed and I hold fast to my peppery language.
She was crafty and talented, but super meek and humble about it. She never raised her voice. She always had devotional time with the Lord every morning before all else. It would not surprise me in the least if Jesus sent actual sunbeams to fall in the pages as she read and kept her coffee miraculously piping hot until she is done. (That’s how valuable the studies and prayers are of a Proverbs 31 woman, according to lore.)
But here’s the thing: She hasn’t had my experiences in life either. To be fair, humans are complicated and wonky (I believe that’s the scientific term.) We are all unique and as such, God doesn’t expect us to be all the same.
My friend had never battled addiction, and was certainly never a slave to the bottle.
Or been rejected by her own family.
She hadn’t experienced abuse as a child.
Her kids never got into any trouble growing up, and are pillars of the community.
She represented everything the church expected of me that I was unable to be, and everything they expected me to give that I couldn’t muster.
I’m more than the sum of what’s happened to me, and so are you. But what’s happened to us inspires our outlook on life – even our outlook on God.
You see, I am not “less than” a Proverbs 31 woman.
I am much more than more than who I used to be. And that’s the only comparing we should be doing as women – contrast ourselves with our past behaviors so that we can better ourselves.
I am simply a person who has collected trauma after trauma and made the conscious effort to overcome on a daily basis. True, I am not my saintly friend, but growth trumps the illusion of perfection any day.
My Creator is not dissatisfied with me for not being her, or the legions of “hers” all through Christendom.
Authenticity over antiquated expectations.
Relationship with God over rules and regulations.
Raw-dogging life with an open mind and heart.
Because I’m not sure a good woman is hard to find, but I am sure she probably has some sass. And I’m sure that setting unrealistic expectations behooves neither male or female; husband or wife.
Spicy girls, don’t despair. God loves you exactly the way he made you – giving you the same leeway to be imperfect that he apparently has afforded men all along.
My concept of God as love means there’s no need to “smite my enemies.” Because our Source Is not on anyone’s “team;” he’s the owner and manager, working things to your benefit – but to theirs, also. We think people who have wronged us deserve wrath, and plead God to avenge us, only to demand forgiveness when we have wronged others. And it’s taken me years to accept that “if God is for me, who can be against me?” applies to every human, everywhere, who is lugging a body around on this plane of existence. More and more, I think this place is a University of sorts. We are here to learn how to love each other and how to love God, because obviously we still haven’t gotten the lesson. That’s okay. Everything in good time. Our Earth Suits (janky as mine may be) are vehicles and vehicles only. I forget that sometimes when they pain gets unbearable. And our assignment, I think, is to retain our kindness through the shitstorm, er, um…journey. Kindness does beautiful things to otherwise very negative people. If we do this leg of our journey and stay kind, that kindness chemically and spiritually changes a person. And if it doesn’t? You’ve ventured everything for love, and will have many more opportunities. We are all trying to figure out hard stuff here. That’s my story and I’m stickin’ to it. Love to all today!
Sometimes when I pray, I’m not even sure what to pray for anymore. But when God brings someone to my mind, that’s the impetus to pray for them.
I don’t mean giving God “instructions” on how to help someone, which I used to call “praying with specificity.” I replaced elaborate prayers with simple trust in God, because the most eloquent prayers are “help help help” and “thank you thank you thank you” (as my favorite author Anne Lamott opines.)
Reconstructing my faith has evolved how I speak with God.
I ask and then I try to listen. Because there is no wrong way to pray, and prayer is designed to be communication from one sentient being to a supreme being, no holds barred.
Once I saw a movie that recommended having a “War Room” – a physical place to go to pray where the reception is clearest to God and where mighty battles are fought in the heavenlies, waiting for our next words to change the outcome in supernatural realms.
So of course I decorated my closet with scripture and crosses aplenty. But all I managed to do was feel guilty that I wasn’t praying more (or right?) every damn time I had to grab a pair of shoes out of the closet.
Was I praying enough? What if I don’t and when I get to Heaven, God informs me that he really wanted to do this magnificent thing, but I was two beggings short of getting the outcome I desired.
See, that puts the onus on me. And the onus is not on me – it is on Love.
I don’t make a big show for myself now, prostrate in my literal prayer “closet,” striving, striving, striving to be the person “God created me to be.” Building a tower of Babylon with my puny, pleading words (which are beautiful to him, by the way, but his love is not dependent upon them.)
No. I mean that if you come to my mind during the course of my day, I am simply asking God to love on you in a way that’s tangible. God loves n us through one another, nature, laughter, and hugs from friends.
If you have a need or a heartbreak, I focus my intention on your hurt as best I can, and believe in advance that he is walking alongside you, no matter what event is anguishing you. Being a very visual person, I picture you in a cloud of love, total acceptance, resolution, and peace. I can’t describe it any better than that, but trust me, it’s better than that.
Just like us, the Holy Spirit craves connection. That’s all prayer really is.
And I ask him to increase your awareness of him in and around us. Because he is always at work in and around us, even when we aren’t begging for his favor. I pray he uses me in any capacity he sees fit to convey his great love.
“Broken lines, broken strings, Broken threads, broken springs, Broken idols, broken heads, People sleeping in broken beds Ain’t no use jiving Ain’t no use joking Everything is broken” –
-The Kenny Wayne Shepherd Band
Our microwave finally pooped out. After 18+ years, it’s dead. Our stove isn’t heating up like it should. I have to be SO careful about what I eat and this makes food preparation that much more difficult.
We have had to replace our fridge / washer / dryer in just the past couple of years because they all died at once. We have three cars, only one with working A/C, and she had 200,000+ miles on it. We love that car. She’s a real trooper.
And I get the feeling like that’s ALL of us right now: Look at us all – an army of badasses. Damn if we aren’t all freaking troopers for making it through whatever shitshow the word is currently.
And all of that wouldn’t be so bad if I wasn’t broken too. Because today I am feeling very, very broken. Like literally all of my joints feel especially loose and painful. If my Earth Suit did it’s JOB to keep things stable and in place, that would be amazing.
I dislocated my thumb again today opening a Topo Chico, for example. What a stupid injury. My injuries are never, “She jumped out of a plane and survived!,” or “she went water skiing and now she is a human pretzel.” No. More like… the time I stepped out of the bed to go pee in the middle of the night and just torqued my right ankle, which snapped the bone. Then I walked around on that broken ankle for 11 days, too stubborn to get it checked out. By the time I got an X-ray, it was broken in TWO places, and surgical pins, plates, and rods were out in. But I digress.
The POINT is I can injure myself in the most asinine ways. Most things in life are made up of broken parts, and I’m eternally trying to learn how to process that reality.
We are all just walking eachother home,” is my new favorite observation.
Now whether we get “home” in a rust bucket (aka my actual body), or a well-appointed, nice and reliable sedan – a nice, tidy life that turned out great because you did “all the right things,” well, that’s for serendipity to hash out.
And that’s the cosmic irony, isn’t it? If our lives were neat and tidy, we’d have no real need for each other. We are only really here to learn how to love and accept love in return.
We need doctors who will help us manage our pain. We need microwave manufacturers. And we need friends, because there are 7 billion people on this planet and not one of us knows what we are doing. Not ONE. But maybe a few can show you the route home, and you can – in kind – do the same.
So, lean on to eachother like your life depends on it, because it does. Let’s spiritually exit the machinery that cranks out unrealistic expectations, and walk arm-in-arm, until we’re “home.”
I used to tell people, “God can fix you.” But now I say, You’re not broken. You are not bad. You don’t need fixing. You need loving. Love put you back together,
On the day You breathed your first. You already have it on-board. God already inhabits you. In every loving gesture you express To humankind (or animal-kind.) In every breath, holiness. In every feeling of fresh hope, In every laugh, sacred joy. You are whole. You are not broken, No matter the evidence Stacked against you. Keep your head up! God is FOR you. You are loved.
My gastroperesis is flaring so hard I’m barely able to keep any food down. This throws other medical issues into a hellish spiral.
My chronic pain has been ridiculous.
We have very difficult things to deal with in the family right now. Really hard things.
I’ve cried several times today, which is no small feat when you’re on antidepressants. It felt awful to cry, and then really good…cleansing.
And it seems a counter-intuitive measure to wallow around in pain and sadness, but every once in a while, you need a good wallow.
Today I will cry, and rest, and bitch about my woes to my ever-patient husband.
I will likely beat myself up for having to cancel plans with friends, and hate myself for feeling melancholy.
I will feel like I am not handling life well AT ALL. (While reminding myself that despite it all, knowing I’m doing my very best.)
At some point, to be transparent, I will feel guilty for even having this little nervy-B, guilty for unloading on my husband, and guilty for having the audacity to complain about this life, when I am truly blessed in so many ways.
I’m pretty sure I’m not done crying today. God, I hope not. There’s a long line of tears queued up in my spirit that need to be purged.
I hope that tomorrow, by some measured miracle, the world on fire won’t seem quite so much like utter doom.
Today I will wallow. I’ll sleep and watch Schitt’s Creek (it’s a balm to my soul), and talk with God about WHAT IS THE DEAL WITH MY LIFE RIGHT NOW. And I’ll look forward to better days.
Because they are always on the way, you know – better ones.
The legendary Hubble Space Telescope, operated by NASA and the European Space Agency (ESA) captured a dazzling snapshot of a large galaxy pulling cosmic material away from a smaller galaxy, and my mental health is HERE for it.
It is helping my mental health because I am fascinated with all things galactic, and every time a new image is captured by Hubble, my worries seem to shrink. It’s impossible to be in wonder and see while nursing a grudge or fussing over a human problem.
Not that our problems aren’t real. Or important. They ARE important, even to the Being who came up with the crazy idea of eternity.
Infinite ness is not a concept we default to. We cannot wrap our minds around the concept of endlessness. But in a world where our troubles seem the most infinite thing we know, Hubble reminds me to zoom out.
Yes, I am hurting. My body aches. My heart grieves. The pandemic looms. The world’s a hot mess express.
Would you look at this economy?
This sociological crap-shoot we are calling “life.”
We become Chicken Littles, running in circles exclaiming, “the sky is falling! The sky is falling!” and then we like to proclaim anyone who doesn’t join our panic is Pollyanna about reality.
Okay…but ZOOM OUT. Pan the picture wider, then wider still.
Imagine yourself and all your pain, a tiny speck on a giant blue marble – just one of billions. Imagine this as an image on your iPhone, in hi-def, as most problems seem.
Now imagine that the same Creator who spins planets in orbit cares intimately about what you do. He cares about you not only as a marble-dweller, but a miracle of cells and thoughts and feelings.
Imagine that this Being of Love is intimate with your every heartache and just as concerned about the state of you as He is the state of the Multiverse.
Just zoom out of the picture, wider and wider. See how perfect the orbits are? Check out those stars. Wow! Each and every one a sun. Each and every molecule of the cosmos is worshipping just by existing.
Existence is worship.
We cannot reach the end of it, just like we cannot reach yet end of Love itself.
Just zoom out. It’s going to be okay.
God is zooming in on us. Let your heart marinate in the magnificence of this concept – a Love so endless, Hubble will never reach it.
Many of you know I struggle with multiple illnesses that can be very debilitating. I know there are some of you going through similar things.
I truly live one day at a time, but for the first time in a minute, I am feeling hopeful about the things I CAN do that are in my power. It’s time to step up my game. Instead of fighting just to survive, I’d like to fight to be as healthy as I can be.
Several really good things are coming up and I want to be at my best. GOOD THINGS. Some travel. Some reconnecting with people I love. It’s very easy to fall into defeatist thinking, but I need to re-center and here’s how I plan to go about it. Sometimes I need a plan!
Today I’m meeting with a nutritionist to find out everything I can do for the gastroperesis. That’s going to mean yet MORE changes. Although I’ve lost a lot of weight, it’s not the healthy way. I must absolutely be better about keeping my diabetes in check as well. I have to eat cleaner, which is hard because dammit, I reward myself with food – the head game relationship I have with it is LOADED, man.
Today, I make time for daily physical therapy (at home) to minimize my dislocations and injuries. There will always be injuries and mobility issues, but I have to do better. The last thing you feel like doing in pain is the exercises, but I have to push through to help keep he musculature strong to support each joint.
Today I will rest when my body says to rest. It’s also difficult with a genetically deficient immune system because I get sick often. My kidneys are not in good shape, although my last labs indicate they haven’t failed further recently. That is what we call a “praise report” right there.
Today I will make time to get quiet and still, because I suck at stillness but my spirit needs it. I will make time to show gratitude deliberately. I will be thankful for all the ways I’m blessed, but I will also be thankful “in advance” of getting healthier, BELIEVING for it. (Y’all remind me I said this later when I get discouraged.)
I will manage my pain as need be, realizing pain management is self care. This is sometimes difficult because I can no longer take Advil or Alieve, or any other anti-inflammatory; which is unfortunate because my conditions are inflammatory. (God, I do miss Advil something awful.
And here’s where I run into trouble: I just have to do all of THIS every single day. That’s overwhelming!
I need to run my health like I run my alcoholism recovery – one single day at a time. Don’t consider “forever,” just do one single good and loving thing towards my body and soul at a time. Just one thing. Then another. I’ll handle tomorrow TOMORROW.
Life is tough but I’m pretty scrappy. I have a lot to learn and a long way to go. But today I start trying to do so with purpose, because I’m not going through all of this just to add more sick years to my life, but to ENJOY this juicy life.
I was noting to my husband last week that my readership has shrunk. It’s not a numbers game, don’t get me wrong. I would much rather have a small readership that is touched, entertained, enjoyed by several people than have a large readership but crank out mediocre content.
Here’s the thing, though. Life is chock full of mediocre content. Life sometimes IS mediocre content.
I was considering this when my husband replied with, “Well you don’t blog very often anymore.” Which is the gospel truth.
The past few years, I don’t post at all unless I’ve had some kind of epiphany to share, or I’m low on hormones and need to vent, or I have something inspiring to say. Why have I gotten into that habit? What about when I’m not feeling encouraging and just want a safe place where I can share my heart, even when my heart is boring and uninspired?
WRITE ANYWAY. That’s when I’m happiest.
I can’t always wait until I in crisis mode to write. It creates a jamb where there should be flow.
This blog is nothing like the one I started in 2012. I was of the “super Christian” persuasion then, full of quoting scripture and doling out pat advice about “trusting the Lord,” If I had a particularly awful day, I would write sweeping tales of how it’s all going to work out because God is in it. What would people THINK of me, if I was 100% authentic and open about doubting faith? It might throw a kink into my Pollyanna-esque style of writing. There’s nothing “super Christian” about that!
It’s true, in that I believe ultimately God IS working in our best interest.
But truth is also looking around you and admitting the world is whack.
I’m a much different writer than I was when I started this crazy thing. I’ll never forget gaining 45 followers the first day and being incredulous that anybody would want to hear what I have to say.
And then there was that one time I went legit viral and got a quarter million hits to ONE blog post. I thought I may actually get to make a living at writing, but the truth is, I make zero money from writing. It is its own reward and I’m okay with that now.
Ten years ago, when I started this blog, I was chronically sick but we couldn’t figure out why. It took many years, many doctors, and many bouts with depression to find out that I have genetic conditions that will affect me the rest of my life. It explained SO MUCH about me since I was born – the injuries, the illnesses. But there’s no cure, and I think it’s about the time I found out my diagnosis that the Pollyanna fell away, little by little.
My faith took a beating too, but came out victorious anyway, if not in an altogether different way.
I told myself in the beginning, I would write honest, or not write at all.
It’s writing honestly about the fact that I’m losing mobility and I’m in horrible health.
It’s being truthful about mental illness struggles, without wondering what everyone “thinks.”
It’s about grieving losses that I told myself I should be “over” by now, and making no apologies for it.
It’s about celebrating little victories and sharing kooky, dopey little stories.
My dream when I write is that somewhere out there, someone I love (or even a perfect stranger) will not feel so damn alone. Because life is HARD, peeps.
If writing is therapy, as I’ve always espoused, then I should probably practice it more often. It’s my way of un-smooshing all my feelings down. So I think I’m going to try to write a little each day. (The “general public” is made up of one sweet, unique soul at a time, anyway.)
I hope you glean a little somethin-somethin’ by reading The Beggar’s Bakery. I am so very glad you’re here, and honored you’d take the time to read my work.
On this – the eve of my blog’s 10th birthday – I am making a resolution to write more. Even if it’s sub-par prose. Even if it’s about vapid, inconsequential things. Especially if I’m struggling and hurting. Especially then.
Thank you SO much for being a part of my journey. God bless us, every one.
Love is the singular thing, and absolutely everything, all at once. All are in it and of it, imbued with this remedy. It is the answer to whatever ails your heart. Love is all that lives on after our Earth Suits fail. It is fed and starved by a thousand moods, yet always nourishes. Love lands in its feet. It’s the only thing we were legit created to experience. Love is like sacred oil – fragrant and dousing and scandalously generous. It leaves a film on you all of your days, and everyone in your world gets a little “oily” when you touch their lives. (Touch them lots!) Love pisses people off when it is believed undeserved, when really people are under-served by it. It breaks the economy of deficit, as its endless. But even though it’s free, people seem to like hoarding it. Many enjoy rationing it, as if there was a finite supply. As if it originated for us, by us. As if we weren’t given it in order to pass it on. Love is a Being. And a Doing. It’s an action and a sacrifice. The feet of Love can walk through fire to get to another hurting soul, and strike up a dance to celebrate itself. Love has wings to fly us to a place of acceptance, and roller skates with which to flee from hate in all its forms. It’s the only thing that will ever make a dent in suffering, and the ultimate remedy for pain. Love is all we take with us. Spread that stuff around copiously. God loves you and so do I. ❤️
How do you define “anxiety,” and how does your anxiety define you?
Anxiety would have me believe that life is just a series of events to kill time while I wait for certain tragedy to strike. As morose as that sounds, if I’m honest, it’s how it FEELS. It robs today of its joy and tomorrow it’s potential.
I would do well to remember that feelings are not facts. Waiting for the “other shoe to drop” is not a strategy for a happy life.
It feels like it will protect your heart to believe the worst, because anything less than horrible will be a nice surprise.
The truth is closer to this: “Life is full of nice surprises, but we will never notice them by expecting the worst.”
Feeding the doom is an old skill I honed in childhood trauma that no longer serves me. It hasn’t served me in years.
It’s a work in progress. I hand my anxiety off to God every day, and say, “Here, take this please. It’s heavy and awkward to carry and outdated.”
I do not wish to take it to recycling anymore, which is what it’s like to expect anxiety to be repurposed.
No. Every day, I give it up and hope God takes it to the dump. He always does, but I always seem to have a fresh supply the next day.
He is unbothered by it. It’s not heavy for him, awkward in size and shape.
Today, I hand in my anxiety yet again, so that my hands are free for joy and potential. And my heart is free to reject a diagnosis of doom.
This morning, I woke up early in the great state of Georgia.
Two of my dearest friends in the world accompanied me to a conference that addressed a faith reconstructed. It was incredible. The teachings were what so many evangelicals (and I was one for most of my life,) would consider utterly scandalous.
Y’all, LOVE that rich, pure, and bounteous SHOULD be scandalous. The most passionate love stories always are.
I didn’t move for a while when I woke, because I simply couldn’t. (If you don’t already think I’m nutty, you might now. And I’m okay with that)
I was pinned in place but this momentous, ridiculously extravagant sensation of love.
It was so thick in the air, it felt womb-ish, like a swim in calm ocean, flowing and bobbing. Or being swaddled like a baby, feeling nurtured and safe.
I didn’t fight it, like so tend to do. I didn’t negate it with my usual self-loathing talk. I always feel “powerless” against my own thoughts. My insecurities are members of a terrorist organization of sorts. During my (literal) “come to Jesus,” I discovered that I don’t have to negotiate with terrorists. I get to choose.
No, instead of fighting and fretting against the swell of love, I just rested in it. It was overwhelming, glorious, and unlike any experience I’ve had in a half-century of Christian fundamentalism. There was not even a trace of shame involved. I was fresh out of bothers for a spell.
At some point, I “feel” God say something to the effect of: “Please don’t talk and think mean thoughts about my little girl. I love her so much.” Wait WHAT!?
“You heard,” says gentle but firm Holy Spirit, her voice strong and convincing.
That little girl is me.
This weekend was like a speed-dating session with my true identity. Lots of uncomfortable moments. Lots of connecting. Lots of nerves. The result is this radical, rich, ridiculous grace for others.
I MUST share what I experienced in the wee hours of the morning with you. I have to. Because it’s LIFE.
Love is life.
Sometimes the supernatural doesn’t come like a lightning strike, dramatic and jarring. It’s not always signs and wonders that the church proper chases for a dopamine hit and considers evidence of a Being of pure Love.
No, sometimes it’s a soul hug first thing in the morning. Supernatural revelation can be realizing you aren’t a cosmic mistake; that you have belonged to Source since before the formation of the Universe. That He belongs to US. I know it sounds strange. But I’m okay with that too.
I welcome the chance to tell you how incredibly loved you are this day.
I don’t want to convert you.
I have no ulterior motives.
I don’t want to change you.
I have no agenda.
I don’t want to push religiousity. Matter of fact, religion is the whole problem. It has almost nothing to do with the actual Trinity, which invites us to a beautiful dance that includes us all.
And as a result of this Great Forgetting , the church can be stingy with the very thing it’s attempting to sell: Love. Purpose. Being.
This weekend, I feel like I had a heart transplant, and I couldn’t be happier.
My prayer today is that you wrap your arms around yourself and hug. Don’t rush it. Really hug yourself tight. Consider it a hug from me.
And so much better – it will be a hug from Papa God. He is wild about you.
May you come to the overwhelming realization of who you really are, and that the opposite of Love is fear. I learned that I don’t have to rent Fear a room in my head. Evict that sucker.
May your awareness of the supernatural be increased so that you can recognize when God “winks” at you.
May you come to know and (this is the hard part) ACCEPT the TRUTH about your inherent value, which is priceless.
Take one lifetime of Old Time Religion. Stir in two cups of Fear-Based Theology. Sprinkle in 2 tbsp of unintentional judginess, three tbsp of Obviously I’m Right, work through dough. Add additional The Bible CLEARLY Says! to taste.
While religious “dough” is trying to rise, but just kind of petering out, prepare in a shofar – I mean BOWL:
Two cups each of Chronic Pain and Debilitating Illness powder that has been sifted through a “name it and claim it” sieve for 40 years, but it’s still lumpy.
Add 4 tbsp frustration, and a dash of Must Not Be Worthy of Healing. Stir in a packet of What Will My Fundamentalist Friends Think. Cry about this step for approximately three more years.
Check ingredients in first bowl to make sure dough is indeed rising. But nope. It’s just sitting there in a big glop.
In yet another bowl, add one adult child who has come out as bisexual, which was NOT in the original recipe, so sayeth the Expectations Set Forth by the Church. Add a smidge of What Will My Fundamentalist Friends Think (if you have any left, which is doubtful. We go through it like gangbusters around here!)
Decide to add many dollups of Mother Love anyway (heck, dump in however much you have,) and set the kitchen timer to two more years on the “acceptance” setting. This is a wet ingredient, so thinning it out will just make it easier to spread. Use liberally.
Open up the pantry and see what else you have that might somehow make it more palatable.
Aww, shucks. All you have is a Costco-sized box a bag of Everything Else Life Can Throw At You. That stuff is SPICY. Always check the label…let’s see…it contains Mental Health Challenges, Losing Mobility, Family Estrangements, Crippling Anxiety, Bouts of Financial Struggle, Alcoholism, Codependency, Childhood Trauma, and 1000 grams of pure Shame Concentrate.
Going back to the bowl, taste the batter. See that it is bad. Mix all ingredients. See that it is WORSE.
While waiting for the timer, it’s important to assume that the Master Chef is angry and frustrated with you. Kind of like an astral Gordon Ramsey or something.
Assure yourself the whole Universe is against you, as is everyone you know and love who is following directions from a 2,000 year old book of recipes that several hundred fallible human people contributed to. Kind of like Gramma’s recipe box that had a hundred food-stained index recipe cards from her friends shoved into between the pages. Make sure to take everything out of context for best results.
Preheat oven to 400 degrees and when timer sounds, decide on how much savory Self-Doubt to use. Seasonings come in “I’m a Worthless Sinner,” and “Searing Disappointment” flavors.
Ask yourself WHAT ARE YOU DOING? Am I just a shitty cook, or so I just have so few ingredients to work with, I’m having a hard time accepting the result?
And what if I’ve been forgetting the Main Ingredient all along?
Next (scary) step:
Decide you’re tired of fear-based faith, dust off your hands, open your heart, ask the Universe to help you see what is Truth, battle-weary, heavy-hearted, and feeling raw inside like dough that won’t rise.
Decide to put all judgement and Christian-ese down the garbage disposal. The Expectations of Other People went bad a long time ago and is really stinking up the place.
Decide to fold Unconditional Love into every single recipe. Never run out! Keep it on the top of every list so you always have enough.
Follow the example set by Jesus always…He is always cooking up something GOOD.
Next, march all three containers used previously out your back door. Gently set down all three, and leave them outside to think about what they’ve done.
Now – this is important – turn off the oven. Nobody is burning on my new watch!
You are not alone, Chef Self.
So join a “cooking” club – one that is comprised of other Seekers with open hearts who want to get at the meat of the Truth, and offer you endless sugar.
Flip the script. Read the instructions anew.
Take one bowl – the most chipped and beat up one you got, and butter it with kindness.
Then invite all your friends over to help you create a masterpiece.
All you will need is:
8 cups HOPE – brimming. Five tbsp of self-forgiveness. A heaping scoop of Studying what the Cookbook Really Calls For – reading between the lines. A tbsp of of Learning to Love Yourself Too will hold it all together when you want to throw in the towel.
And last, but MOST importantly, add All the Jesus You Have, all day every day. All of it. Tip it over and smack the bottom of the box for every molecule of Jesus it’s got. Really pile it in on. Study his ways in the context given, and leave room for Holy Spirit in every dish.
Oh, and tell your friends that All the Jesus is just another measurement of LOVE. Get to know HIS way around the kitchen together.
These few ingredients are all you need, Junior Chef, to mix up a reconstruction of faith for the ages. And keep in mind:
If you feel like you have to keep Fear on hand “just in case,” know that God is not the store where you purchased Fear. That stuff is very in-organic.
If you’re grieving the losses of this hard life, pull up a chair and come sit by me. There is always plenty of room at Christ’s table. And mine. *Pulls out chair and pats the seat in a welcoming invitation.*
If you’re ambling around aimlesssly, your chef hat askew, join me. I’ll be celebrating that I finally understand, “It is for freedom you were set free.”
And if you’re deconstructing your faith, and If you’re being called “deceived,” “fallen” – or (and I’m okay with this one) – “ex-evangelical,” remind yourself that the Word of God is an actual person. As Master Chef, he wants to see you succeed.
It’s been a long time since I’ve blogged; the longest span of time in the six year history of The Beggar’s Bakery. In the interim, I began another blog, “So She Laughed Anyway,” which takes on issues with a humorous bent. I think I’ve only posted three posts to it. It has been a dry season, writing-wise.
But here in a difficult place, I find myself needing to write again. And I think I need to do so often, as writing things down seems to relocate my thoughts to a better, less scary, neighborhood. The challenge to myself is to write a blog post every day, for 60 days. I am prayerful that God gives me material with which to work, but chances are good some of the posts might be drivel. If I go off the rails, please be patient with me. I will get my mojo back at some point.
What has been happening since last we met? A lot. A whole lot.
Over the past two years especially, my heart has been in religion deconstruction mode. In crisis with my health, I came face to face with the issue of trying to relegate the personal Jesus I know with the dogma of the Church Proper, and Jesus came out on top. I questioned everything I’d ever been taught, took a historical and contextual look at the Bible, and prayed that the very Spirit of God would reveal truth to me. I plan on touching on this process in the days to come. Much like any worthwhile endeavor, the process has not been linear. In reconstructing my entire faith, I feel like I might be able to tell others “where to find bread” again. But it won’t be white-washed and it won’t be fundamentalist Christianity. It will be Truth.
The aforementioned illness is a trifecta of health issues that are slowly causing me to lose mobility, and constantly causing me pain. Every day. Pain, in one form or another. I have Ehlers-Danlos Syndrome, POTs, and Mast Cell Activation Disease, severe and recurrent migraines, along with lots of other disorders and diseases. I just call it “Alphabet Soup Disorder” to save time. Lots of acronyms. Some of my genes are mutated, I am only grateful that neither of my children seems to have inherited these issues.
So, suffice to say, I am home a lot. I am by myself a lot. This necessity has proven to be both a benefit and a curse. It’s a sticky wicket, because the more isolated I become, the more depressed I get, and the more depressed I become, the less I want to physically be with my friends, because sick people can be a real drag.
There are two of me these days. There is the sick me, who seems to be taking over some days. She is whiny, sad, hopeless, and in horrible pain; and there is the REAL me, who loves to laugh, be silly, encourage people, and travel. The real me is clawing her way back, but it seems that each time I gain a little foothold on the side of the wellness cliff, another boulder comes tumbling down. Sounds dramatic, right? Well, it feels dramatic.
It’s been a dramatic year for my family. A very difficult time. Yet I still haven’t taken a drink, and for that I am proud and very grateful.
I’ve begun a new hobby recently that has been a stepping stone to writing again. I’ve discovered abstract art, and the therapy of painting. A pretty good gauge of my mental health is the amount of paint on my person. The days I am up to my elbows in acrylics are the days that I started off sad and scared, and in some degree of physical and mental pain – and ended up creating something colorful that cheers me.
So, I am setting a goal to blog every day for two months, but I’m not going to set it in stone. I am fantastic at setting unrealistic expectations of myself. I’m going to try to write here or at SoSheLaughedAnyway.com each day, even when nothing I have to say is earth-shattering. I need to get back in the habit, even if not one single person reads my stuff.
There will be “brain droppings” (as the late, great George Carlin called random musings) about recovery, chronic illness, spiritual growth, and the general absurdity of life; and literally God only knows what else.
There will be posts with what some might consider controversial subject matter. There will be potty words. There will be transparency about my relationship with God, which looks almost nothing like it used to, but in a good way. There will be randomness.
Oh, so much randomness.
If you’re one of the 1,950 subscribers to The Beggar’s Bakery, I am so grateful for you. Thanks for sticking around. ❤ Please consider following “So She Laughed Anyway” on WordPress as well.
If you’re new, welcome to the jungle!
My goal is simple: Do life honestly, and share the journey.