I was going to title this piece, “When it’s too much,” but then I asked myself to be more specific….WHAT is “too much?” What exactly is it that is TOO MUCH for me to handle right now? The answer is simply YES.
I’m feeling so defeated and sad today. I was doing pretty well with water aerobics, which I’ve been enjoying since February – it’s the only exercise my joints can handle. A week ago in class, I tore a muscle in my right hip doing underwater side kicks.
By the way, not one single 80 + year old woman in the whole class had trouble with that maneuver. Yet such a simple movement took me down. I’m looking at yet MORE physical therapy now and I can’t do the class for the foreseeable future.
This injury is the proverbial straw that broke the camel’s back, er….hip.
I have Ehlers-Danlos Syndrome, along with a half dozen other debilitating, exhausting, painful conditions. And it’s driving my depression into this hurricane-force thing that is spiraling in my spirit. The outer bands are making landfall today, and I can feel the intensity whipping up.
EDS is a progressive thing, meaning all of the cells in my body have mutated collagen, and I’m not going to get better.I do not – can not – take narcotics for my chronic pain because I’m an alcoholic in recovery 18 years and I still don’t trust myself to go that route.
I am literally wearing out. It’s getting to where I can hardly move my body some days, and when I do, each movement sounds like a bone cracking. In addition to being annoying, it’s painful. And embarrasing.
It’s TOO MUCH.
Yes, I know by the Stripes of Jesus, I am healed. I have had every deliverance ministry method prayed over me. People have told me that if I ‘just believe more’, I’d be healed.
To which I say, STOP TELLING SICK PEOPLE THESE THINGS. When they don’t get healed Binny Hinn-style, it adds insult to injury. Not only are you in sick and experiencing chronic pain, but NOW you doubt your faith and feel inferior and less-than a “good Christian.”
My genes are still mutated. God knows about it. He and I are square, after many years of me being bitter and angry. He knew my joints would held together with bubble gum instead of gorilla glue, so to speak. He isn’t angry with me. He isn’t punishing me. It just falls under the header of “shit happens,” and it happens to everyone in one capacity or another.
Better to just encourage and love on the chronically ill. That’s what we need.
Because I have anxiety and depression under normal circumstances, but there have been several times in my life when I couldn’t push through it…when I went from being sad and low-grade anxious, to I CANNOT GET OUT OF BED.
Not “I really FEEL like staying in bed” … no. I literally – as the Millennials say – I CAN NOT EVEN.
Can not even laugh.
Can not even cry.
Can not even do the things I love – like create art, and even just BLOG.
But I know if I don’t get it out in writing and share it with others who might be able to relate, it will only gather strength. So here is a blog post. The one thing I have gotten done today.
I’m tired. I am so tired. There are too many things going on in my home life and (lack of) professional life. Too much change. Too much pain. Just too much.
Most days, I try to be positive, and some days I can even find the humor in things, but when every joint in my body is hurting – and the hip is almost unbearable – it makes it difficult. This is approximately the tenth injury in the last few months. From small rib subluxations to finger dislocations, a sprained wrist, to all the crappy, debilitating POTs symptoms, and constant illness from having a horrible immune system….
I’m TOAST. Ever feel that way?
I know Jesus walks with me. I know he crouches down with me in the dark places. And yes, I know “this too will pass.” But it’s sure as hell not yet in the process of passing right now.
It’s the most frustrating thing in the world to realize all of your blessings, but still not be able to pull yourself up out of the sadness.
Hey, thanks for reading my work, ya’ll. In joviality and in sorrow. In celebration and in grieving. Knowing I have so many precious readers who take the time to read my innermost thoughts is both mind-blowing and comforting. We are never, NEVER alone in what we go through!
I hope when this blows over, I can get back to business being snarky and ultra-spiritual (that’s a joke, ha.) But I’m of the mind that when we are in low places, it doesn’t mean we are less-than spiritual. It just means our spirits need a little more help.
It’s been a long time since I’ve blogged; the longest span of time in the six year history of The Beggar’s Bakery. In the interim, I began another blog, “So She Laughed Anyway,” which takes on issues with a humorous bent. I think I’ve only posted three posts to it. It has been a dry season, writing-wise.
But here in a difficult place, I find myself needing to write again. And I think I need to do so often, as writing things down seems to relocate my thoughts to a better, less scary, neighborhood. The challenge to myself is to write a blog post every day, for 60 days. I am prayerful that God gives me material with which to work, but chances are good some of the posts might be drivel. If I go off the rails, please be patient with me. I will get my mojo back at some point.
What has been happening since last we met? A lot. A whole lot.
Over the past two years especially, my heart has been in religion deconstruction mode. In crisis with my health, I came face to face with the issue of trying to relegate the personal Jesus I know with the dogma of the Church Proper, and Jesus came out on top. I questioned everything I’d ever been taught, took a historical and contextual look at the Bible, and prayed that the very Spirit of God would reveal truth to me. I plan on touching on this process in the days to come. Much like any worthwhile endeavor, the process has not been linear. In reconstructing my entire faith, I feel like I might be able to tell others “where to find bread” again. But it won’t be white-washed and it won’t be fundamentalist Christianity. It will be Truth.
The aforementioned illness is a trifecta of health issues that are slowly causing me to lose mobility, and constantly causing me pain. Every day. Pain, in one form or another. I have Ehlers-Danlos Syndrome, POTs, and Mast Cell Activation Disease, severe and recurrent migraines, along with lots of other disorders and diseases. I just call it “Alphabet Soup Disorder” to save time. Lots of acronyms. Some of my genes are mutated, I am only grateful that neither of my children seems to have inherited these issues.
So, suffice to say, I am home a lot. I am by myself a lot. This necessity has proven to be both a benefit and a curse. It’s a sticky wicket, because the more isolated I become, the more depressed I get, and the more depressed I become, the less I want to physically be with my friends, because sick people can be a real drag.
There are two of me these days. There is the sick me, who seems to be taking over some days. She is whiny, sad, hopeless, and in horrible pain; and there is the REAL me, who loves to laugh, be silly, encourage people, and travel. The real me is clawing her way back, but it seems that each time I gain a little foothold on the side of the wellness cliff, another boulder comes tumbling down. Sounds dramatic, right? Well, it feels dramatic.
It’s been a dramatic year for my family. A very difficult time. Yet I still haven’t taken a drink, and for that I am proud and very grateful.
I’ve begun a new hobby recently that has been a stepping stone to writing again. I’ve discovered abstract art, and the therapy of painting. A pretty good gauge of my mental health is the amount of paint on my person. The days I am up to my elbows in acrylics are the days that I started off sad and scared, and in some degree of physical and mental pain – and ended up creating something colorful that cheers me.
So, I am setting a goal to blog every day for two months, but I’m not going to set it in stone. I am fantastic at setting unrealistic expectations of myself. I’m going to try to write here or at SoSheLaughedAnyway.com each day, even when nothing I have to say is earth-shattering. I need to get back in the habit, even if not one single person reads my stuff.
There will be “brain droppings” (as the late, great George Carlin called random musings) about recovery, chronic illness, spiritual growth, and the general absurdity of life; and literally God only knows what else.
There will be posts with what some might consider controversial subject matter. There will be potty words. There will be transparency about my relationship with God, which looks almost nothing like it used to, but in a good way. There will be randomness.
Oh, so much randomness.
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My goal is simple: Do life honestly, and share the journey.